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Tag Archive for: spinal cord injury

VIDEO: Overcoming Paralysis, Changing Healthcare, and Finding Your Passion

February 20, 2019/in General Blog Posts, Personal/by Chris Leeuw

Last August, exactly eight years after waking up in the ICU, I had the honor of speaking at the 2018 Joseph Group Wealth Summit in Columbus, Ohio.

It was the first time I gave a public account of my entire personal story – the moment of the accident, life as a quadriplegic, what happens to the body after spinal cord injury, and a detailed description of early rehabilitation, skilled nursing care, and the roadblocks patients encounter as they navigate through a complex healthcare system.

I also explained traveling to Neuroworx to receive affordable, continued therapy, and the model of patient-centric healthcare that inspired the birth of NeuroHope.

 

Full talk:

0:00 mark: Waking up in intensive care and the day of the accident
9:20 mark: Spinal Cord Injury 101 and life as a quadriplegic
12:55 mark: Re-thinking healthcare, the journey from the hospital, to a nursing home and the void for continued therapy after neurologic injury
21:20 mark: My journey to Neuroworx and re-learning to walk
25:44 mark: A life changed, creating NeuroHope and finding purpose.

https://www.neurohopewellness.org/wp-content/uploads/2019/02/Chris-Leeuw.jpg 894 1594 Chris Leeuw /wp-content/uploads/2022/07/NeuroHope_Color.svg Chris Leeuw2019-02-20 11:56:332019-04-09 10:55:31VIDEO: Overcoming Paralysis, Changing Healthcare, and Finding Your Passion

Client Spotlight: John Piper

March 21, 2017/in General Blog Posts/by Chris Leeuw

A veteran of the Pike Township Fire Department and the War in Afghanistan, in June of 2015, John Piper suffered a life changing spinal cord injury in a motorcycle crash.  His journey from the ICU to inpatient and outpatient rehab, to extended rehab at Frazier Rehabilitation Institute and NeuroHope is an inspiring one.

Recovering from neurologic injury is a physical, mental, and emotional battle.  The determination John shows each day is moving.

THIS is what it’s all about everyone!

 

https://www.neurohopewellness.org/wp-content/uploads/2017/03/Piper-1.jpg 350 960 Chris Leeuw /wp-content/uploads/2022/07/NeuroHope_Color.svg Chris Leeuw2017-03-21 20:46:522017-03-21 20:46:52Client Spotlight: John Piper

Client Spotlight: Macy Huff

April 7, 2016/in General Blog Posts/by Chris Leeuw

Macy Huff was a 15-year old sophomore at Ben Davis High School when a tumble at cheerleading practice went terribly wrong.

On April 25, 2013 she was demonstrating a maneuver to a younger student and miscalculated her landing.  She over-rotated, landed on her head, and broke her neck.  The spinal cord injury Macy suffered instantly left her paralyzed from the shoulders down.  In the blink of an eye she was thrust into a new and formidable reality and forced to cope with a new body and a new life.

Macy&Mom_cropped The mental and the physical toll that spinal cord injuries administer are difficult to overcome.  It is an arduous road of healing, rehabilitating, and learning how to live with a body that has changed in look, feel, and function.  Macy lives on that road.  And she has confronted her struggle with fortitude from day one.

She is considered a c5/6 quadriplegic and does not have much function below her injury level. She lives with significant paralysis in her core, legs, and hands.  Even so, Macy presents much better than most c5 quadriplegics.   Thanks to a unique insurance plan, Macy has been fortunate to take part in regular therapy and strengthening programs ever since her injury.  Most spinal cord injured individuals are forced to leave rehabilitation after a few months.  Unfortunately, many fail to keep up with therapy and exercise once they move home.  Not Macy.   The two years following her injury were spent taking part in weekly outpatient programs to maximize her recovery and strengthen her body.   Additionally, she’s been a regular client at NeuroHope ever since she left traditional therapy in the spring of 2015.  Last year she even experimented with a ReWalk Exoskeleton at the clinic.  You can see her first steps in the device here.

Macy’s hard work and determination over the last three years is evident.  She has fantastic posture and sitting balance.  She is comfortable transferring in and out of her chair.  Her blood pressure issues are a concern of the past.   For someone with a cervical spinal cord injury, those are difficult goals to achieve.

Macy_news Today, Macy is preparing for college.  But, before she leaves there is another goal on her mind.   She is training three times per week at NeuroHope to take assisted steps across the graduation stage to receive her high school diploma!

CBS 4 visited NeuroHope earlier in the year to detail her daily grind at the clinic.  Watch the video here!

Macy, like all of the clients we are privileged to work with, inspires us!  We are proud to be a part of her journey, and we are eager to see her standing on the Ben Davis stage on June 4th.

Click here to learn how you can help the Huff’s raise money for an adaptable van that she can drive!

 

 

 

 

https://www.neurohopewellness.org/wp-content/uploads/2016/03/Macy_Blog_Cover.jpg 350 960 Chris Leeuw /wp-content/uploads/2022/07/NeuroHope_Color.svg Chris Leeuw2016-04-07 07:47:582016-04-07 07:47:58Client Spotlight: Macy Huff

One Summer Sunday: A Sister’s Perspective

August 15, 2014/in General Blog Posts, Success Story/by Chris Leeuw

Chris and Allison

My sister Allison has been by my side since day one after the accident 4 years ago.

At the Rehabilitation hospital, she stayed well past the “allowed” visiting hours each night.  At the nursing home,  she kept me company, fed me, and did her best to keep my spirits up during the darkest times.  She spent hours fighting and writing hospital and insurance company administrators in an effort to grant more rehabilitation time.  She was my biggest cheerleader every step of the way as I slowly gained back my mobility and independence.  She even walked with me as I struggled through a mile at a fundraiser for the Reeve Foundation at the Kentucky Derby Marathon in 2012.

Now, she is playing an instrumental role in helping to create NeuroHope.

Allison recently posted the update below on her facebook page.  It’s both chilling and moving, and a reminder that entire families are changed by spinal cord injury – not just the person thrown into paralysis.

Essentially 4 years ago – August 8, 2010.

It was a sunny afternoon. I was enjoying a typically beautiful summer day at Lake Wawasee with close friends and family. I remember going on boat rides and trying to take kiddo’s on the jet-skis.  We were “borrowing” Chris’s two SeaDoos, and I remember calling my “little” brother to ask his advice about some issue we were having.

Carefree and oblivious.

“So Chris, what kind of oil do they take?” We spoke so briefly. Just a random chat. It’s funny how the random details stick with you.

I remember our dear friends packed up early to go home and to work/school the next day. I think the first day of school that year was the upcoming Monday.  I stayed behind at the cottage. I was vacuuming, cleaning, and enjoying one last summer sunset with a plan to drive back to Indianapolis in the morning.

I didn’t hear from anyone else that evening and I crashed early.  It still shatters my soul to think what was going on back home.

I woke up the next morning to strange and somber voicemails on my phone. From cousin Julie: “Allison, I heard about Chris’s accident, call me, let me know what we can do, we love you.”

That was how I heard the news.  Through all the drama of the day, a helicopter trip to the ICU and a night spent in the Emergency Room, Mom and Dad hadn’t called me. They knew I was three hours north and feared me driving back on my own. They were caught up in a nightmare.

Somethings are a blur now. We felt like zombies for months. Tears and Panic. Hope and Fear.

“Fight fight fight” , became the mantra.  I will never forget the strength of Chris’s attitude. I still try to live each day with gratitude and purpose.

Today, we have a renewed purpose.

Four years after a C4/5 spinal cord injury left him paralyzed from the neck down, we have created a public charity that will offer the extended rehabilitation services he struggled so hard to obtain.

We need your support.  We need help to spread the word.

If you haven’t already, please watch and share the inspirational video that Chris put together with help from the Christopher and Dana Reeve Foundation and his close friends.  It is too easy to take the simple things for granted in life. Mobility. Freedom. Health.

Take a moment and breathe in your life and your blessings.  Life can change in an instant and yet we all have the power to change lives.

Ask yourself, “What change will I make today?”

 

 

/wp-content/uploads/2022/07/NeuroHope_Color.svg 0 0 Chris Leeuw /wp-content/uploads/2022/07/NeuroHope_Color.svg Chris Leeuw2014-08-15 15:04:522022-09-26 16:42:31One Summer Sunday: A Sister’s Perspective

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Jan 25

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Learning to walk again is something no one ever expects they will need to do.  It is the definition of determination, resilience , patience, and guidance.  PT Brittanie is here for Mark every step of the way 💪💪.

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Jan 6

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Therapy Director Elliot and Chris were in studio @indynowtv to tell the NeuroHope story and the hundreds of families we have helped on their road to recovery from #Spinalcordinjury #braininjury and #Stroke.  Neurologic injuries are life changing.  The need for affordable rehab after hospital discharge, and specialized fitness programs to improve long-term health is REAL.  Thanks to @uindy_kspt, @orthoindy Foundation , @reevefoundation and all those who have helped us grow.
Recovery is a process.  It’s why we’re here!.
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#affordablerehab #nonprofit #neurorecovery #physicaltherapy

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Jan 2

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Just a few of the NeuroHope #heroes battling #paralysis and the hard work they put in everyday….
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#AffordableRehab #spinalcordinjury #strokerecovery #motivationmonday

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Dec 27

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Thank you @indystar for telling my personal story recovering from #spinalcordinjury , the growth of NeuroHope thanks to @orthoindy Foundation and most importantly ..the hundreds of people recovering from paralysis NeuroHope helps receive affordable , after-hospital care.

It’s all possible thanks to our amazing staff that change lives everyday , and the supporters that believe in us!

Readable link in bio!

#spinalcordrehab #spinalcordinjuryrecovery #sci #nonprofit #beinspired #indy #affordablerehab

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Dec 25

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Merry Christmas and Happy Holidays from all of us at NeuroHope!

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Dec 2

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It’s getting pretty Christmas-y at NeuroHope! 🎄 Decorations are up , and we’re in the spirit!
#tistheseason

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Nov 30

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The healthcare system is complex, especially for people recovering from neurological conditions like spinal cord injury, brain injury, and stroke.  The cost of care is high, and the time spent in insurance-covered rehabilitation is short.  Our mission revolves around providing services for the people that fall through the cracks of healthcare.  It’s why we’re here.  We smashed our $5,000 #GivingTuesday goal, and raised $7,000 yesterday to support our programs for people recovering from paralysis
Thank you all!

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Nov 29

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Keep those #GivingTuesday donations coming! $200 for a chance for four ROW 1 Colts tix, field passes, transportation to #MondayNightFootball on 12/26!
Donate link in bio!
Help us reach our $5,000 goal to help those recovering from paralysis!

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Nov 29

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TODAY!  A $200 donation could WIN FOUR 1st row @colts tickets, field passes, and transportation to Monday Night Football 12/26! Courtesy of @hensleylegal !

Help us reach our $5,000 goal today to help people recovering from #paralysis. 
Donation link in bio!
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#givingtuesday #giveback #nonprofit #spinalcordinjuryrecovery #healthcare #indy

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Nov 14

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Day 1 of our @ndtassociation seminar led by DPT Monica Diamond. “Facilitating Transitional Movements Effectively”. 
Lecture and lab today - for postural control, and balance for neuromuscular impairments.
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#pt #neurorecovery #strokerecovery #spinalcordinjuryrecovery #neuropt #physicaltherapy #ndta

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Nov 12

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Wishing a special #VeteransDay weekend to clients Mike, Bob, and ALL who have served!  Thank you for your service - and for being YOU.

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Nov 4

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Kayode (c4/5 spinal cord injury) working on sit-to-stands with Megan.  Activating quads, glutes and STANDING TALL.  Recovery is a process.  This is why we’re here!.
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#neurorecovery #spinalcordinjury #spinalcordinjuryrecovery #affordablerehab #keeppushing

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Oct 27

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BIG Congratulations to Wellness Director Bart Richwalski - now certified through the NSCA as a Special Population Specialist (CSPS). This is a rigorous exam established for kinesiologists to address the unique fitness needs of those with chronic neuromuscular conditions.

We can’t express how lucky we are to have Bart leading our Wellness Team.  Since joining NeuroHope 5 years ago, he has built a parallel program to our clinical therapy side, and made NeuroHope’s overall model - a hybrid of skilled therapy and personalized fitness what it is today.

Congratulations Bart!.
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#neuroexercisetherapist #neurorehabilitation #neurorecovery #csps #nsca

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Oct 19

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Happy #PTmonth to all the rock star physical therapists changing lives.  Our own Elliot and Brittanie, along with PTA’s Marshall and Lydia make  NeuroHope what it is. 💪💪.
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#physicaltherapy #neuroscience #pt #choosept #physiotherapy #physicaltherapymonth #neuropt

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Oct 11

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Spinal cord injury, brain injury, stroke, and neurologic conditions can take months or years of recovery, but patients are often discharged from insurance-covered care in a matter of weeks. 

Since 2015 we have helped hundreds of families receive continued rehabilitative care during the most trying times in their lives.  It’s the reason why NeuroHope was created.

These injuries are life-changing.  We are honored and thankful that the @orthoindy Foundation is helping us build a care center in #Indy to support patients throughout their entire recovery process!
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#healthcare #AffordableRehab #neurorecovery #orthoindy #philanthropy #nonprofit #physicaltherapy #spinalcordinjury #braininjury #strokerecovery @indystar @ibjnews @wthrcom @wrtvnews @wishtv8 @fox59

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Oct 7

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Here we GROW!!
It’s time for some gym renovations, and prepping for a BIG ANNOUNCEMENT next week!  STAY TUNED!!

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Oct 5

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We are ready for our CLOSE UPS!! Get ready for a video series highlighting the amazing staff and patients at NeuroHope.  And STAY TUNED FOR A MAJOR ANNOUNCEMENT NEXT WEEK!

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#AffordableRehab #neurorecovery #spinalcordinjury #braininjury #strokerecovery

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Oct 2

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Yesterday, we celebrated the life of Andrew Habel.  Who passed one year ago due to a #TBI.  His wife Erin, his friends, family, and colleagues at @compass_construction launched “Habelfest”, an annual BBQ competition in his honor.  It was a day of OUTSTANDING food, a community of support, and more than $90,000 raised in his honor!

NeuroHope is beyond humbled to be the charity chosen by the Habel’s to receive the proceeds in his honor.  Andrew’s funds will be used for gym renovations at NeuroHope, and be placed in a patient care fund to directly serve patients in need, receive post-hospital therapy after neurologic injury.

We can’t thank the Habel’s, Compass, @barnraisers and his entire community of supporters enough for letting us honor and celebrate him with you!
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#habelfest #TBI #neurorecovery #bbqcompetition #community #noblesville #fundraising

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Sep 29

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PTs, OTs, SLP!! NeuroHope is hosting a @ndtassociation NDTA Seminar: “Facilitating Transitional Movements: A NDT Perspective” November 14 & 15. (14 CEs). Join us!  Register at NDTA.org
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#ndta #physicaltherapy #occupationaltherapy #speechtherapy #neurorecovery #ndta

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Sep 27

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Happy Work-iversary to Therapy Director Elliot Cohee!! Can’t express how lucky we are to have Elliot leading the clinical team at NeuroHope.  His passion, expertise, devotion to patients, and leadership are second to NONE! 
Cheers Elliot! 🥂 .
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#physicaltherapy #pt #neurorehab #neurorecovery #dpt

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Sep 20

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AWESOME day for golf and fundraising for NeuroHope at  Hensley Legal Group, PC “Swing Fore Hope” yesterday.  Major thanks to the 20+ teams, sponsors, and donors that made our 5th annual scramble a success!!

#fundraising #nonprofit #paralysisrecovery #spinalcordinjuryrecovery #socent #golfscramble @hensleylegal @rehabmedicalinc
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