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Tag Archive for: Rep. Cindy Kirchhofer

Our Law to Fund Recovery Programs Signed by Gov. Pence!

July 1, 2015/in Annoucements, General Blog Posts/by Chris Leeuw

Today Senate Act 166, an Indiana state law to help fund long-term physical therapy programs was signed into law by Governor Pence.   It’s a special day for NeuroHope, and for all the clients we will serve, because it was written specifically with our mission in mind.

For the last seven months we’ve worked closely with key state legislators (Sen. Patricia Miller, Sen. Luke Kenley, Rep. David Frizzell, Rep. Cindy Kirchhofer and others) to raise awareness to the glaring void in care for people recovering from traumatic injury.  There are too many families thrown into the world of spinal cord or brain injury who soon realize that the time available for their recovery is severely limited.  Many will be discharged from inpatient rehabilitation after a matter of weeks, with only a small number of outpatiet visits available for the rest of their recovery.

miller chairWe first approached Senator Miller, chair of the Senate Health Committee, last fall to share my story and the vision we had for NeuroHope.  Back in 2007, Senator Miller helped create the Indiana Spinal Cord and Brain Injury Research Fund.  This is a wonderful fund that proves Indiana is already at the forefront of a changing paradigm of neurologic research and rehabilitation.  Every year, the fund receives about 1.5 million dollars from statewide motor vehicle registrations.  Every two years, the legislature decides the allowance.  Previously, this money was only permitted to be used for research purposes.  Last year for example, 9 researchers received grants for various projects around the state.  One in particular is a very worthwhile study at the Rehabilitation Hospital of Indiana researching diabetes and neurologic injury.  This is great work that will continue, but Senator Miller felt that more could be done with the fund.  She quickly became our leading advocate and introduced the bill that we’ve helped shepherd through the entire legislative process.   She proposed that a portion of the fund, in addition to it’s use for research,  be used for the long-term treatment of neurologic injury.  Specifically, for a clinic that offers extended services at affordable rates after insurance expires – the crux of our mission at NeuroHope.

In January and in March I gave detailed presentations to the Health Committees of both the Indiana House of Representatives and the Senate.  You can read my testimony here.   I explained the compexities of neurologic injury, and how care is limited to the amount dictacted by insurance companies.  I also discussed how an independent organization like NeuroHope, that is willing to provide services outside the boundaries of traditional facilities, will help fill the void in care in Indiana.

Our mesage was clear and our message was heard!  The bill passed each bipartisan committee unopposed. It passed the Senate 47-0.  It passed the House of Representatives 95-0.  Throughout its journey the bill never received a single vote of opposition, and was signed into law by the Governor in April.

What it Means

  • A portion of the money in the Indiana Spinal Cord Injury and Brain Injury Fund must now be granted to a facility that offers: “post-acute extended physical therapy services for individuals with spinal cord and brain injuries at affordable rates”.
  • An annual amount of 10{d57c75664ee40cd9f9f9d2c854d19b920dafc77e6732c691aa0b0118029496b3}-15{d57c75664ee40cd9f9f9d2c854d19b920dafc77e6732c691aa0b0118029496b3} of the fund (approximately $150,000 – $225,000) must now be used for this purpose.
  • The 11 member Indiana Spinal Cord and Brain Injury Research Board approves funding.
  • This opportunity WILL NOT fully fund NeuroHope!  It is simply a fund which we are eligible to apply to for assistance each year.

Our model of service revolves around providing supplemental care for the patients that need it.  That means longer therapy visitis, and more therapy visits.  In order to do this, NeuroHope needs income outside of insurance reimbursement to offset the true cost of therapy.

As a non-profit, much of our success will always rely on fundraising.  Searching for grants, organizing charitable events, and seeking out individual donors (however large or small), will always play an integral part of our sustainability.  The new law now provides another potential revenue stream.

It’s not often that a grassroots organization like ours is able to help pass a law in a single legislative session.

This law will not fully fund NeuroHope!  Even if we are successful in securing money from the fund, it will not be available until next year.

Nevertheless this is an important milestone for the healthcare system and for disabled individuals in Indiana and we are honored to be a part of it.

 

https://www.neurohopewellness.org/wp-content/uploads/2015/07/Governor_officialpic_resize.jpg 594 960 Chris Leeuw /wp-content/uploads/2022/07/NeuroHope_Color.svg Chris Leeuw2015-07-01 11:11:252022-09-26 17:07:23Our Law to Fund Recovery Programs Signed by Gov. Pence!

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Mar 14

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#SpinalCordInjury recovery is a team effort💪. Caleb in a Locomotor Training treadmill session with the NeuroHope team. Step by step we’re here for you.  #keeppushing #AffordableRehab #spinalcordinjuryrecovery

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Mar 9

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On the first Friday of each month, we host a community group of rotating activities and topics. This month, @pawsandthinkinc, a fellow nonprofit that brings therapy dogs into the community paid us a visit!  Golden Retriever Nai’a had 3 objectives : Belly rubs, head pats, and smiles.
MISSION ACCOMPLISHED! 😀.
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Here’s to the amazing women who make our community what it is: leaders, clinicians, patients, caregivers & supporters.  Thank you!
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Mar 2

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Less than two months before her 2022 high school graduation, Olivia was paralyzed in a car crash.  She has been on a physical, emotional, and mental journey over the last year, recovering from her spinal cord injury.  In the year since her accident , she has suffered pressure sores, UTIs, blood pressure issues and more.
She bounces back , and keeps pushing.  The need for continued therapy and exercise programs after life-changing injuries is real - and her story is an inspiring one!  Read it through the link on our IG Story! .
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KENDAL driving NeuroFit class 💪💪!!
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Feb 14

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Happiest of Birthdays to Wellness Director Bart!! He has helped build our programs for 5 years and helped hundreds of people (like Mitch 💪💪) on their recovery journey!  Thank you Bart!
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Calab (Spinal cord injury), on the floor with Barry and Kendal.  Balance and core work to keep his body moving 💪💪.
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Jan 31

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We are looking for an energetic Occupational Therapist passionate about #neurorecovery AND a Development / Advancement Manager to help our growing team reach new audiences, donors, and partners!

Join our growing team .Interested applicants inquire through the link in our bio, and type either "OT" or "Development" in the subject line.

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Jan 25

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Learning to walk again is something no one ever expects they will need to do.  It is the definition of determination, resilience , patience, and guidance.  PT Brittanie is here for Mark every step of the way 💪💪.

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Jan 6

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Therapy Director Elliot and Chris were in studio @indynowtv to tell the NeuroHope story and the hundreds of families we have helped on their road to recovery from #Spinalcordinjury #braininjury and #Stroke.  Neurologic injuries are life changing.  The need for affordable rehab after hospital discharge, and specialized fitness programs to improve long-term health is REAL.  Thanks to @uindy_kspt, @orthoindy Foundation , @reevefoundation and all those who have helped us grow.
Recovery is a process.  It’s why we’re here!.
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Jan 2

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Just a few of the NeuroHope #heroes battling #paralysis and the hard work they put in everyday….
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Dec 27

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Thank you @indystar for telling my personal story recovering from #spinalcordinjury , the growth of NeuroHope thanks to @orthoindy Foundation and most importantly ..the hundreds of people recovering from paralysis NeuroHope helps receive affordable , after-hospital care.

It’s all possible thanks to our amazing staff that change lives everyday , and the supporters that believe in us!

Readable link in bio!

#spinalcordrehab #spinalcordinjuryrecovery #sci #nonprofit #beinspired #indy #affordablerehab

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Dec 25

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Merry Christmas and Happy Holidays from all of us at NeuroHope!

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It’s getting pretty Christmas-y at NeuroHope! 🎄 Decorations are up , and we’re in the spirit!
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Nov 30

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The healthcare system is complex, especially for people recovering from neurological conditions like spinal cord injury, brain injury, and stroke.  The cost of care is high, and the time spent in insurance-covered rehabilitation is short.  Our mission revolves around providing services for the people that fall through the cracks of healthcare.  It’s why we’re here.  We smashed our $5,000 #GivingTuesday goal, and raised $7,000 yesterday to support our programs for people recovering from paralysis
Thank you all!

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Nov 29

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Keep those #GivingTuesday donations coming! $200 for a chance for four ROW 1 Colts tix, field passes, transportation to #MondayNightFootball on 12/26!
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Help us reach our $5,000 goal to help those recovering from paralysis!

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Nov 29

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TODAY!  A $200 donation could WIN FOUR 1st row @colts tickets, field passes, and transportation to Monday Night Football 12/26! Courtesy of @hensleylegal !

Help us reach our $5,000 goal today to help people recovering from #paralysis. 
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Nov 14

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Day 1 of our @ndtassociation seminar led by DPT Monica Diamond. “Facilitating Transitional Movements Effectively”. 
Lecture and lab today - for postural control, and balance for neuromuscular impairments.
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Wishing a special #VeteransDay weekend to clients Mike, Bob, and ALL who have served!  Thank you for your service - and for being YOU.

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Nov 4

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Kayode (c4/5 spinal cord injury) working on sit-to-stands with Megan.  Activating quads, glutes and STANDING TALL.  Recovery is a process.  This is why we’re here!.
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Oct 27

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BIG Congratulations to Wellness Director Bart Richwalski - now certified through the NSCA as a Special Population Specialist (CSPS). This is a rigorous exam established for kinesiologists to address the unique fitness needs of those with chronic neuromuscular conditions.

We can’t express how lucky we are to have Bart leading our Wellness Team.  Since joining NeuroHope 5 years ago, he has built a parallel program to our clinical therapy side, and made NeuroHope’s overall model - a hybrid of skilled therapy and personalized fitness what it is today.

Congratulations Bart!.
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