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Tag Archive for: Christopher Reeve

NeuroHope at Inaugural Reeve Summit

March 3, 2020/in General Blog Posts, Homepage, News/by Chris Leeuw

When Christopher Reeve became paralyzed 25 years ago, spinal cord injury was launched into the public eye.  Paralysis can happen to anyone anywhere.  There are 18,000 new injuries in the United States every year.  It is a community no one expects to join.  When we become a part of it – the fear, suffering, pain, & emotional despair is more than we think possible to bear.  But, we also discover strength, the capacity to overcome mental and physical adversity, and an appreciation and outlook on life we never knew was possible. We experience a healthcare system in need of change, a research community in need of a road map for collaboration and funding, and a paralysis community fighting for a voice for advocacy.

The Christopher and Dana Reeve Foundation has been the primary force behind advocacy for these issues ever since its creation, and it will continue to be the guiding light in the ongoing effort for both cure and care for years to come.  The inaugural Reeve Summit brought researchers, physicians, rehabilitation centers, spinal cord injury survivors, and advocates together for three days in Washington D.C. to discuss cure, care, and the future of spinal cord injury research and awareness.  Keynote addresses were made by Christopher Reeve’s daughter, and Vice-Chair of the Board of Directors Alexandra Reeve Givens, Chief Scientific Officer Ethan Pearlstein, and Good Morning America’s Robin Roberts.

While still a long way from a cure – the spinal cord injury world is at an exciting time as research and knowledge of both neurorecovery and rehabilitative interventions are advancing. It’s important for scientists and researchers to challenge each other , but also communicate and collaborate for CURE and CARE.  In the meantime, the paralysis community – people recovering from and living with paralysis need to be ready, stay healthy, and ENJOY THIS LIFE!

The healthcare system must build an infrastructure for a proper continuum of care to improve lives, and provide adequate access to interventions NOW!  That is part of the small role we are proud to play at NeuroHope.

When the injured “join” this community, we realize there are passionate voices that will not give up on advocacy for cure, care, and rehabilitative access.  Research, healthcare, quality of life, and disability rights are all connected in this world.

Many thanks to the Christopher and Dana Reeve Foundation for being the force that brings these voices together.

https://www.neurohopewellness.org/wp-content/uploads/2020/03/Reeve-Summit-2020-1.jpg 303 797 Chris Leeuw /wp-content/uploads/2022/07/NeuroHope_Color.svg Chris Leeuw2020-03-03 15:56:162022-09-26 16:35:19NeuroHope at Inaugural Reeve Summit

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Mar 14

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#SpinalCordInjury recovery is a team effort💪. Caleb in a Locomotor Training treadmill session with the NeuroHope team. Step by step we’re here for you.  #keeppushing #AffordableRehab #spinalcordinjuryrecovery

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Mar 9

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On the first Friday of each month, we host a community group of rotating activities and topics. This month, @pawsandthinkinc, a fellow nonprofit that brings therapy dogs into the community paid us a visit!  Golden Retriever Nai’a had 3 objectives : Belly rubs, head pats, and smiles.
MISSION ACCOMPLISHED! 😀.
#therapydog #therapydogsofinstagram

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Mar 8

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Here’s to the amazing women who make our community what it is: leaders, clinicians, patients, caregivers & supporters.  Thank you!
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#internationalwomensday

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Mar 2

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Less than two months before her 2022 high school graduation, Olivia was paralyzed in a car crash.  She has been on a physical, emotional, and mental journey over the last year, recovering from her spinal cord injury.  In the year since her accident , she has suffered pressure sores, UTIs, blood pressure issues and more.
She bounces back , and keeps pushing.  The need for continued therapy and exercise programs after life-changing injuries is real - and her story is an inspiring one!  Read it through the link on our IG Story! .
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#neurorecovery #spinalcordinjury #sci #keeppushing #affordablerehab

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Feb 17

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KENDAL driving NeuroFit class 💪💪!!
#adaptivegym #adaptiveworkout #cardio #spinalcordinjuy #keeppushing

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Feb 14

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Happiest of Birthdays to Wellness Director Bart!! He has helped build our programs for 5 years and helped hundreds of people (like Mitch 💪💪) on their recovery journey!  Thank you Bart!
#neurorehabilitation #neurorehab #affordablerehab

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Feb 5

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Calab (Spinal cord injury), on the floor with Barry and Kendal.  Balance and core work to keep his body moving 💪💪.
#spinalcordinjury #neurorehab #sci #keeppushing

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Jan 31

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We are looking for an energetic Occupational Therapist passionate about #neurorecovery AND a Development / Advancement Manager to help our growing team reach new audiences, donors, and partners!

Join our growing team .Interested applicants inquire through the link in our bio, and type either "OT" or "Development" in the subject line.

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Jan 25

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Learning to walk again is something no one ever expects they will need to do.  It is the definition of determination, resilience , patience, and guidance.  PT Brittanie is here for Mark every step of the way 💪💪.

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Jan 6

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Therapy Director Elliot and Chris were in studio @indynowtv to tell the NeuroHope story and the hundreds of families we have helped on their road to recovery from #Spinalcordinjury #braininjury and #Stroke.  Neurologic injuries are life changing.  The need for affordable rehab after hospital discharge, and specialized fitness programs to improve long-term health is REAL.  Thanks to @uindy_kspt, @orthoindy Foundation , @reevefoundation and all those who have helped us grow.
Recovery is a process.  It’s why we’re here!.
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#affordablerehab #nonprofit #neurorecovery #physicaltherapy

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Jan 2

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Just a few of the NeuroHope #heroes battling #paralysis and the hard work they put in everyday….
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#AffordableRehab #spinalcordinjury #strokerecovery #motivationmonday

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Dec 27

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Thank you @indystar for telling my personal story recovering from #spinalcordinjury , the growth of NeuroHope thanks to @orthoindy Foundation and most importantly ..the hundreds of people recovering from paralysis NeuroHope helps receive affordable , after-hospital care.

It’s all possible thanks to our amazing staff that change lives everyday , and the supporters that believe in us!

Readable link in bio!

#spinalcordrehab #spinalcordinjuryrecovery #sci #nonprofit #beinspired #indy #affordablerehab

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Dec 25

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Merry Christmas and Happy Holidays from all of us at NeuroHope!

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Dec 2

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It’s getting pretty Christmas-y at NeuroHope! 🎄 Decorations are up , and we’re in the spirit!
#tistheseason

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Nov 30

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The healthcare system is complex, especially for people recovering from neurological conditions like spinal cord injury, brain injury, and stroke.  The cost of care is high, and the time spent in insurance-covered rehabilitation is short.  Our mission revolves around providing services for the people that fall through the cracks of healthcare.  It’s why we’re here.  We smashed our $5,000 #GivingTuesday goal, and raised $7,000 yesterday to support our programs for people recovering from paralysis
Thank you all!

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Nov 29

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Keep those #GivingTuesday donations coming! $200 for a chance for four ROW 1 Colts tix, field passes, transportation to #MondayNightFootball on 12/26!
Donate link in bio!
Help us reach our $5,000 goal to help those recovering from paralysis!

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Nov 29

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TODAY!  A $200 donation could WIN FOUR 1st row @colts tickets, field passes, and transportation to Monday Night Football 12/26! Courtesy of @hensleylegal !

Help us reach our $5,000 goal today to help people recovering from #paralysis. 
Donation link in bio!
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#givingtuesday #giveback #nonprofit #spinalcordinjuryrecovery #healthcare #indy

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Nov 14

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Day 1 of our @ndtassociation seminar led by DPT Monica Diamond. “Facilitating Transitional Movements Effectively”. 
Lecture and lab today - for postural control, and balance for neuromuscular impairments.
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#pt #neurorecovery #strokerecovery #spinalcordinjuryrecovery #neuropt #physicaltherapy #ndta

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Nov 12

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Wishing a special #VeteransDay weekend to clients Mike, Bob, and ALL who have served!  Thank you for your service - and for being YOU.

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Nov 4

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Kayode (c4/5 spinal cord injury) working on sit-to-stands with Megan.  Activating quads, glutes and STANDING TALL.  Recovery is a process.  This is why we’re here!.
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#neurorecovery #spinalcordinjury #spinalcordinjuryrecovery #affordablerehab #keeppushing

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Oct 27

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BIG Congratulations to Wellness Director Bart Richwalski - now certified through the NSCA as a Special Population Specialist (CSPS). This is a rigorous exam established for kinesiologists to address the unique fitness needs of those with chronic neuromuscular conditions.

We can’t express how lucky we are to have Bart leading our Wellness Team.  Since joining NeuroHope 5 years ago, he has built a parallel program to our clinical therapy side, and made NeuroHope’s overall model - a hybrid of skilled therapy and personalized fitness what it is today.

Congratulations Bart!.
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#neuroexercisetherapist #neurorehabilitation #neurorecovery #csps #nsca
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