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NeuroHope: Reeve Foundation Spotlight!

March 26, 2018/in Annoucements, General Blog Posts, Homepage, Media, News/by Chris Leeuw

NeuroHope is the newest affiliate of the Christopher and Dana Reeve Foundation NeuroRecovery Network (NRN), and has been featured as a spotlight program on their website / newsletter!  Read the original article here! 

Full text copied below:

“There is no preparation for a spinal cord injury,” says Chris Leeuw. “You wake up one morning a physically fit, able-bodied person and in the blink of an eye your life is completely transformed. When you are looking at paralysis and the potential permanence of that, that’s a situation that’s almost impossible to describe.”

Leeuw is the Founder and Executive Director of NeuroHope, the newest Christopher & Dana Reeve Foundation NeuroRecovery Network® (NRN) Community Fitness and Wellness Facility in Indianapolis, IN. In August 2010, he sustained a level C4 spinal cord injury in a swimming accident that initially left the then 28-year-old paralyzed from the neck down. Like many, Leeuw was given a poor outlook.

“After a few weeks, I began to see some signs of hope,” said Leeuw. “Early recovery in my fingers and right leg gave me the inspiration I needed to do more. My time in outpatient therapy was up and I was still mostly paralyzed. I knew that with more rehab, I had a good chance of recovery.”

In 2011, he travelled to Neuroworx in South Jordan, UT, a NRN Community Fitness and Wellness Facility at the time.

“Neuroworx understood neurological recovery and had the resources and experience to help me get my life back,” said Leeuw. “It took two years to get where I am today, walking and independent. Recovery is slow and different for everyone, but much of the journey is similar for all who are hurt.”

Although Leeuw has had a good deal of recovery, his injury is still a big part of his everyday life.

“I wanted to bring the cutting-edge interventions I’d experienced at Neuroworx back to Indianapolis,” said Leeuw. “Living with a spinal cord injury is not just about recovery, it is about long-term maintenance. Every movement is a conscious effort. These recoveries are a lot more than neurologic return, a lot of it is maintaining your body afterward.”

In 2015, he opened NeuroHope as a part-time clinic in a small University of Indianapolis gym with a therapy mat and a vision.

“Right now in traditional healthcare, people get discharged from inpatient and insurance will reimburse only for a limited number of outpatient visits. Then they go home,” said Leeuw. “These individuals need more time to maximize their recovery. They need time to learn some of the skills to deal with their new life, and in most communities, there is no place for them to go. There is a void in long-term rehab options.”

Leeuw reached out for community support. Working with the Indiana state legislature, Leeuw received a nearly $1 million grant from the Indiana Spinal Cord and Brain Research Fund which allowed NeuroHope to expand. The facility moved into a larger space, bought new equipment and now sees 50 participants a year, with a hope to double that number by 2019.

“My main goals were to create a clinic where people could come for continued, affordable care and we wanted to join the NRN,” said Leeuw. “I saw first-hand the value of the NRN interventions and I wanted badly to bring that to Indiana.”

In 2017, NeuroHope’s staff was invited to begin training to become a NRN Community Fitness and Wellness facility.

“We are thrilled to be part of the NRN. It gives us a chance to reach more people and bring that level of care to Indiana for affordable private pay rates,” said Leeuw. “Healthcare is great here but we want to go beyond that so people can continue their care. This is about providing a wellness center in addition to therapy where disabled individuals, wounded veterans, stroke survivors, brain injury survivors can go to exercise to live a long, happy and healthy life.”

Leeuw continues, “An injury changes you, changes your family, and changes your character. Every family needs more help when they leave the hospital. Our hope is to be there for them as they navigate their new path, and put them in the best position to maximize their recovery and quality of life.”

Tags: Christopher and Dana Reeve Foundation, NeuroRecovery Network, Neuroworx
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https://www.neurohopewellness.org/wp-content/uploads/2018/05/NRN-story-blog.jpg 350 960 Chris Leeuw /wp-content/uploads/2022/07/NeuroHope_Color.svg Chris Leeuw2018-03-26 16:01:452022-09-26 16:38:24NeuroHope: Reeve Foundation Spotlight!
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Jan 25

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Learning to walk again is something no one ever expects they will need to do.  It is the definition of determination, resilience , patience, and guidance.  PT Brittanie is here for Mark every step of the way 💪💪.

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Jan 6

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Therapy Director Elliot and Chris were in studio @indynowtv to tell the NeuroHope story and the hundreds of families we have helped on their road to recovery from #Spinalcordinjury #braininjury and #Stroke.  Neurologic injuries are life changing.  The need for affordable rehab after hospital discharge, and specialized fitness programs to improve long-term health is REAL.  Thanks to @uindy_kspt, @orthoindy Foundation , @reevefoundation and all those who have helped us grow.
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Just a few of the NeuroHope #heroes battling #paralysis and the hard work they put in everyday….
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Dec 27

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Thank you @indystar for telling my personal story recovering from #spinalcordinjury , the growth of NeuroHope thanks to @orthoindy Foundation and most importantly ..the hundreds of people recovering from paralysis NeuroHope helps receive affordable , after-hospital care.

It’s all possible thanks to our amazing staff that change lives everyday , and the supporters that believe in us!

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#spinalcordrehab #spinalcordinjuryrecovery #sci #nonprofit #beinspired #indy #affordablerehab

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Dec 25

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Merry Christmas and Happy Holidays from all of us at NeuroHope!

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Dec 2

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It’s getting pretty Christmas-y at NeuroHope! 🎄 Decorations are up , and we’re in the spirit!
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Nov 30

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The healthcare system is complex, especially for people recovering from neurological conditions like spinal cord injury, brain injury, and stroke.  The cost of care is high, and the time spent in insurance-covered rehabilitation is short.  Our mission revolves around providing services for the people that fall through the cracks of healthcare.  It’s why we’re here.  We smashed our $5,000 #GivingTuesday goal, and raised $7,000 yesterday to support our programs for people recovering from paralysis
Thank you all!

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Nov 29

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Keep those #GivingTuesday donations coming! $200 for a chance for four ROW 1 Colts tix, field passes, transportation to #MondayNightFootball on 12/26!
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Help us reach our $5,000 goal to help those recovering from paralysis!

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Nov 29

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TODAY!  A $200 donation could WIN FOUR 1st row @colts tickets, field passes, and transportation to Monday Night Football 12/26! Courtesy of @hensleylegal !

Help us reach our $5,000 goal today to help people recovering from #paralysis. 
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Nov 14

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Day 1 of our @ndtassociation seminar led by DPT Monica Diamond. “Facilitating Transitional Movements Effectively”. 
Lecture and lab today - for postural control, and balance for neuromuscular impairments.
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Nov 12

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Wishing a special #VeteransDay weekend to clients Mike, Bob, and ALL who have served!  Thank you for your service - and for being YOU.

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Nov 4

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Kayode (c4/5 spinal cord injury) working on sit-to-stands with Megan.  Activating quads, glutes and STANDING TALL.  Recovery is a process.  This is why we’re here!.
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Oct 27

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BIG Congratulations to Wellness Director Bart Richwalski - now certified through the NSCA as a Special Population Specialist (CSPS). This is a rigorous exam established for kinesiologists to address the unique fitness needs of those with chronic neuromuscular conditions.

We can’t express how lucky we are to have Bart leading our Wellness Team.  Since joining NeuroHope 5 years ago, he has built a parallel program to our clinical therapy side, and made NeuroHope’s overall model - a hybrid of skilled therapy and personalized fitness what it is today.

Congratulations Bart!.
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Oct 19

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Happy #PTmonth to all the rock star physical therapists changing lives.  Our own Elliot and Brittanie, along with PTA’s Marshall and Lydia make  NeuroHope what it is. 💪💪.
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Oct 11

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Spinal cord injury, brain injury, stroke, and neurologic conditions can take months or years of recovery, but patients are often discharged from insurance-covered care in a matter of weeks. 

Since 2015 we have helped hundreds of families receive continued rehabilitative care during the most trying times in their lives.  It’s the reason why NeuroHope was created.

These injuries are life-changing.  We are honored and thankful that the @orthoindy Foundation is helping us build a care center in #Indy to support patients throughout their entire recovery process!
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Oct 7

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Here we GROW!!
It’s time for some gym renovations, and prepping for a BIG ANNOUNCEMENT next week!  STAY TUNED!!

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Oct 5

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We are ready for our CLOSE UPS!! Get ready for a video series highlighting the amazing staff and patients at NeuroHope.  And STAY TUNED FOR A MAJOR ANNOUNCEMENT NEXT WEEK!

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Oct 2

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Yesterday, we celebrated the life of Andrew Habel.  Who passed one year ago due to a #TBI.  His wife Erin, his friends, family, and colleagues at @compass_construction launched “Habelfest”, an annual BBQ competition in his honor.  It was a day of OUTSTANDING food, a community of support, and more than $90,000 raised in his honor!

NeuroHope is beyond humbled to be the charity chosen by the Habel’s to receive the proceeds in his honor.  Andrew’s funds will be used for gym renovations at NeuroHope, and be placed in a patient care fund to directly serve patients in need, receive post-hospital therapy after neurologic injury.

We can’t thank the Habel’s, Compass, @barnraisers and his entire community of supporters enough for letting us honor and celebrate him with you!
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Sep 29

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PTs, OTs, SLP!! NeuroHope is hosting a @ndtassociation NDTA Seminar: “Facilitating Transitional Movements: A NDT Perspective” November 14 & 15. (14 CEs). Join us!  Register at NDTA.org
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Sep 27

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Happy Work-iversary to Therapy Director Elliot Cohee!! Can’t express how lucky we are to have Elliot leading the clinical team at NeuroHope.  His passion, expertise, devotion to patients, and leadership are second to NONE! 
Cheers Elliot! 🥂 .
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Sep 20

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AWESOME day for golf and fundraising for NeuroHope at  Hensley Legal Group, PC “Swing Fore Hope” yesterday.  Major thanks to the 20+ teams, sponsors, and donors that made our 5th annual scramble a success!!

#fundraising #nonprofit #paralysisrecovery #spinalcordinjuryrecovery #socent #golfscramble @hensleylegal @rehabmedicalinc
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