“Swing Fore Hope” Scramble Raises $15,000!

It was an AWESOME afternoon at NeuroHope’s  inaugural “Swing Fore Hope” charity golf scramble!  The rain and thunderstorms held off (somehow), and we had a great turnout.  30 Teams! 26 sponsors!  Thank you to all who spent the afternoon with us at The Fort Golf Resort.

A special thanks goes to Hensley Legal Group PC for helping to organize the festivities, Delta Faucet, who featured a faucet and shower head give-away, Andy Mohr Buick GMC, and our headlining sponsors The Incrediplex and Valeo Financial.

Shout out to our generous hole sponsors as well: Goodman Campbell Brain & Spine, Systemax Corporation, Leeuw Oberlies & Campbell PC, Langdon Shaw Associates, Scopelitis Garvin Light Hanson & Feary PC, hc1.com, Heidi Orth, Indie Asset Partners LLC, BATS Wireless, Bright Ideas in Broadripple, Kareo, Restorative Therapies Inc., Community Rehabilitation Hospital, ClaimAid, The National Bank of Indianapolis, Sparenberg Farms, Lannie Thompson: FC Tucker, Rehabilitation Associates of Indiana, Circle City Reporting, Mirazon, Jordan Lemons Construction, National Seating and Mobility, Sunrise Medical, David Bruce: State Farm, NuStep.

We had a fantastic time with a “Longest Drive”, “Closest-to-the-pin”, and “Tournament Champion”, along with raffles and an autographed racing suit courtesy of IndyCar driver Marco Andretti!  Together, we raised $15,000! Not to shabby for our first ever outing.

 


 

Chris Leeuw Awarded “Rosenbaum Friend of Physical Therapy” from INAPTA

NeuroHope Founder and Executive Director Chris Leeuw was presented with the 2018 “William T. Rosenbaum Friend of Physical Therapy” award by the Indiana chapter of the American Physical Therapy Association (APTA) at Bellarmine University in Louisville, KY on September 22.

From the INAPTA: “The award is presented to honor and recognize the accomplishments of those persons outside our profession who, through their dedicated assistance and support, have promoted our ideals and improved our profession.”

Leeuw was nominated and presented with the award by Donna Peterson, who was recognized as the Schneider PTA of the Year in 2017.  Peterson was Leeuw’s primary therapist during his two month inpatient rehabilitation following his 2010 spinal cord injury.  Five years later, she joined NeuroHope when Leeuw and physical therapist Nora Foster first launched the clinic to provide long-term, affordable therapy for neurologic injuries.

Peterson’s remarks:

“Chris Leeuw’s life changed in an instant when a little over 8 years ago, a perfect late summer day and adventure left him paralyzed from the neck down as a result of a C4-C5 SCI. I had the fortunate pleasure of meeting Chris during the early days of this journey as one of his first physical therapists in acute rehabilitation.  I knew then that Chris, along with his family, had a special drive that the injury and the status quo of the health care system would not contain.

 Fortunately for Chris, he demonstrated early signs that his injury was incomplete and his potential for recovery was great. What he was lacking was time, as insurance was pushing for discharge from acute rehab and the intensive therapy that his injury indicated.  Chris and his family, not taking “no” or “that’s how the system works”, as an answer fought for an alternative and found a program in Utah that offered affordable, long term rehabilitation options. Chris thrived in this environment and was able to make huge strides in his recovery. Upon his return to Indiana, Chris vowed to make a difference and began his quest to develop and provide a similar option in Indiana and change the paradigm of rehabilitation and wellness for individuals affected by and living with paralysis in Indiana.  

That’s how NeruoHope was born. In the months and years that followed, Chris worked tirelessly to fund and open NeuroHope in February 2015, a non-profit outpatient clinic with a mission to provide affordable, activity-based therapy to people living with and recovering from neurologic injury.

In the last few years, not only has Chris opened NeuroHope, but he has been instrumental in changing legislation that allows funding for long term rehabilitation and wellness, promoted awareness of the needs of those with neurological injuries, been a mentor, inspiration and friend to patients and supporters of Neurohope, facilitated the strategic affiliation with the Christopher & Dana Reeve Foundation NeuroRecovery Network as a one of only 7 Community Fitness and Wellness Centers in the U.S.,  and lead multiple fundraising efforts which have allowed Neurohope to expand to offset the costs in providing services to countless individuals.  On top of that, his most outstanding achievement was hiring me. 

In all seriousness, I have been honored to have the unique opportunity to watch Chris battle his personal physical challenges with SCI, but take an idea and turn it into reality that benefits countless individuals.   I knew early on, that Chris would always look for a new road, a new way, and never stop striving to be the best version of himself.  Chris, through his relentless pursuit of his vision, has provided others with the opportunity to become the best version of themselves and allow them every possible chance for maximum recovery and the best quality of life possible.

I am honored to present Chris Leeuw, my former patient, current boss and long-time friend with the 2018 Bill Rosenbaum Friend of PT Award.”

“Swing Fore Hope” Golf Scramble – September 24th!

Mark your calendars for Monday, September 24!

We are thrilled to announce our 1st Annual “Swing Fore Hope” Golf Scramble to benefit NeuroHope, sponsored by Hensley Legal Group, PC. The action starts at noon at The Fort Golf Resort at Fort Harrison State Park!

Enjoy an end-of-summer Monday hitting the links, enjoy a free lunch, and take a run at some prizes – all to benefit NeuroHope!  Scramble rules apply, which means each team plays their best stroke every shot.  No matter your golfing skills, you are guaranteed a good time!

– Individual player: $65
– Foursome: $250

We are seeking event and individual hole sponsors!  For sponsorship opportunities click here, and contact Ryan Kreicker at: [email protected]

Learn more about the outing and register online by clicking here!

Or, download an entry form and mail in your registration by clicking here!

Can’t make it, but would LOVE to show your support?! Donate here!

NeuroHope Wins $5,000 as an Impact 100 Finalist!

Impact 100 is a charitable women’s giving circle that awards high impact grants to Indianapolis nonprofits in five specialized areas: Arts & Culture, Education, Environment, Family, and Health & Wellness.

In a highly competitive selection process, one charity from each area emerges as a finalist eligible for a grand prize of $100,000.

Although we didn’t take home the top prize, NeuroHope is honored to be named the 2018 finalist in “Health & Wellness”!  At a presentation at the Ritz Charles we were awarded $5,000 to help continue our mission of affordable rehabilitation following neurologic injury!

It’s all thanks to a fantastic giving circle that is truly IMPACTING our entire community.  Learn more about Impact 100 by clicking here.

NeuroHope: 2018 Brackets For Good Champions!

WE DID IT!! Each one of YOU made NeuroHope the 2018 BRACKETS FOR GOOD CHAMPIONS!!  We are still in awe at the support that flooded in for our cause throughout this MONTH LONG tournament.  Round by round, you carried us past 63 other fantastic charities to the very end. In total, we raised $80,088 AND took home the $10,000 grand prize.  SIMPLY STUNNING!

As one of the smaller charities in the tournament, we were seeded in the “Least Resources / Least Awareness” division.  This meant we were seeded low and faced some difficult competition.  But, THANKS TO YOU, we wore our Cinderella slipper well.  The final round was edge-of-your seat entertainment.  A NeuroHope  “war room” was set up at the Incrediplex As the donations poured in throughout the closing seconds, the LAST PLAY put us over the top for a thrilling $42,339 – $40,207 final round victory.  CHECK OUT THE VIDEO OF THE CLOSING SECONDS BELOW!

Throughout this campaign we totaled:

  • 716 donations
  • 123 First time donors
  • A grand total of $90,088

We are proud and humbled that our mission to provide affordable, extended rehabilitation for neurologic injury is striking a chord in our community and we have all of you to thank.

A special shout-out is dedicated to our corporate teammates at Incrediplex and Hensley Legal Group, who helped make this improbable championship run a reality!

What a month. THANK YOU ALL!

NeuroHope: Reeve Foundation Spotlight!

NeuroHope is the newest affiliate of the Christopher and Dana Reeve Foundation NeuroRecovery Network (NRN), and has been featured as a spotlight program on their website / newsletter!  Read the original article here! 

Full text copied below:

“There is no preparation for a spinal cord injury,” says Chris Leeuw. “You wake up one morning a physically fit, able-bodied person and in the blink of an eye your life is completely transformed. When you are looking at paralysis and the potential permanence of that, that’s a situation that’s almost impossible to describe.”

Leeuw is the Founder and Executive Director of NeuroHope, the newest Christopher & Dana Reeve Foundation NeuroRecovery Network® (NRN) Community Fitness and Wellness Facility in Indianapolis, IN. In August 2010, he sustained a level C4 spinal cord injury in a swimming accident that initially left the then 28-year-old paralyzed from the neck down. Like many, Leeuw was given a poor outlook.

“After a few weeks, I began to see some signs of hope,” said Leeuw. “Early recovery in my fingers and right leg gave me the inspiration I needed to do more. My time in outpatient therapy was up and I was still mostly paralyzed. I knew that with more rehab, I had a good chance of recovery.”

In 2011, he travelled to Neuroworx in South Jordan, UT, a NRN Community Fitness and Wellness Facility at the time.

“Neuroworx understood neurological recovery and had the resources and experience to help me get my life back,” said Leeuw. “It took two years to get where I am today, walking and independent. Recovery is slow and different for everyone, but much of the journey is similar for all who are hurt.”

Although Leeuw has had a good deal of recovery, his injury is still a big part of his everyday life.

“I wanted to bring the cutting-edge interventions I’d experienced at Neuroworx back to Indianapolis,” said Leeuw. “Living with a spinal cord injury is not just about recovery, it is about long-term maintenance. Every movement is a conscious effort. These recoveries are a lot more than neurologic return, a lot of it is maintaining your body afterward.”

In 2015, he opened NeuroHope as a part-time clinic in a small University of Indianapolis gym with a therapy mat and a vision.

“Right now in traditional healthcare, people get discharged from inpatient and insurance will reimburse only for a limited number of outpatient visits. Then they go home,” said Leeuw. “These individuals need more time to maximize their recovery. They need time to learn some of the skills to deal with their new life, and in most communities, there is no place for them to go. There is a void in long-term rehab options.”

Leeuw reached out for community support. Working with the Indiana state legislature, Leeuw received a nearly $1 million grant from the Indiana Spinal Cord and Brain Research Fund which allowed NeuroHope to expand. The facility moved into a larger space, bought new equipment and now sees 50 participants a year, with a hope to double that number by 2019.

“My main goals were to create a clinic where people could come for continued, affordable care and we wanted to join the NRN,” said Leeuw. “I saw first-hand the value of the NRN interventions and I wanted badly to bring that to Indiana.”

In 2017, NeuroHope’s staff was invited to begin training to become a NRN Community Fitness and Wellness facility.

“We are thrilled to be part of the NRN. It gives us a chance to reach more people and bring that level of care to Indiana for affordable private pay rates,” said Leeuw. “Healthcare is great here but we want to go beyond that so people can continue their care. This is about providing a wellness center in addition to therapy where disabled individuals, wounded veterans, stroke survivors, brain injury survivors can go to exercise to live a long, happy and healthy life.”

Leeuw continues, “An injury changes you, changes your family, and changes your character. Every family needs more help when they leave the hospital. Our hope is to be there for them as they navigate their new path, and put them in the best position to maximize their recovery and quality of life.”

Open House Thanks! and ‘Brackets For Good’ Tip-off!

The NeuroHope Team would like to extend a heartfelt THANK YOU to everyone who made it to our Open House on Friday night! The outpouring of support was more than we imagined. Nearly 300 of you toured our gym and packed the Incrediplex auditorium to hear our story, learn about our services, and be inspired by our clients – and 1,300 MORE of you tuned into our feed on Facebook Live.

You recognize the impact we are having on the lives of our clients and you are rallying around us!

At the Open House we shared our journey, and explained our expansion to a new gym thanks to support from the Indiana Spinal Cord and Brain Injury Research Fund from the State Department of Health.  This has allowed us to begin a research project with the University of Indianapolis Krannert School of Physical Therapy, and join the prestigious Christopher and Dana Reeve Foundation NeuroRecovery Network as 1 of 11 worldwide affiliates that collaborate and provide innovative treatment and extended physical therapy and wellness after neurologic injury!

While this expansion has enabled us to grow – our mission continues to be focused on providing affordable care for those that need it.  That means community support is the foundation of our services!

How You Can Help:

We are giving Brackets For Good another run this year!  And we need YOUR help in the FUNDRAISING starting this Friday, March 2!

Brackets For Good is a weekly “competition” between charities to raise funds each week, with a chance to advance through the bracket (think college basketball’s March Madness) to a $10,000 grand prize (in addition to keeping all funds raised).  Last year we raised $54,000 and made a run to the tournament Final Four!  View this year’s bracket here!   Let’s win it this year – and secure funds for our new gym!!

Donations can be made online as soon as the tournament starts, and you can watch the scores update REAL-TIME.  Stay tuned to our newsletters, and follow us on Facebook for updates!  We will let you know when the giving begins!

NeuroHope Open House: Friday, February 23!

Save the date!! The NeuroHope Open House is Friday February 23rd at our NEW GYM inside the Incrediplex! Come see the growth our supporters have been a part of since 2014, learn how we are changing rehabilitation from neurologic injury in Indiana, and hear from our patients!

Come hungry! Free food from 5:30 – 8:00, and don’t miss remarks at 7:00!

Over the last 12 months, NeuroHope has expanded to a new gym, added passionate staff, received support from the Indiana Spinal Cord and Brain Injury Research Fund from the State Department of Health, began a research project with the University of Indianapolis Krannert School of Physical Therapy, and joined the prestigious Christopher and Dana Reeve Foundation NeuroRecovery Network as 1 of 11 worldwide affiliates that collaborate and provide innovative treatment and extended physical therapy and wellness after neurologic injury!

Most importantly, in 2017 we helped 49 clients along their road to recovery!  It has been a thrilling year, and we would love to celebrate with you!

     

 

 

 

  • 5:30 – Doors open at the Incrediplex event center, food and drinks available, NeuroHope gym open to visit.
  • 7:00 – Remarks from NeuroHope staff and patients
  • 7:30-8:00 – NeuroHope gym open to visit

Parking at the main entrance of the Incrediplex:
6002 Sunnyside Rd.
Indianapolis, IN 46236

See you there!

Welcome To Our New Home at the Incrediplex!

It has been a busy fall of packing and renovating – but our relocation is complete and we are thrilled to be seeing clients at our new gym at 6002 Sunnyside Rd. We are proud to have fostered a partnership with the Incrediplex at their sports and entertainment complex. Their team did a tremendous job with construction.

 

 

 

 

 

 

 

 

 

 

 

 

The new space features a front desk / waiting zone, two large therapy areas, therapy offices, FES station, gym space for our wheelchair gym, NuSteps, cable machine and SCIFit Arm/leg cycle, a PowerPlate for vibration training, adaptable Total Gym, and more.  Additionally, there is an area cut specifically for our gait training treadmill system when it arrives later this year and we become an affiliate of the Christopher and Dana Reeve Foundation NeuroRecovery Network.

 

 

 

 

 


 

 

 

 

 

We are now open 5 days per week, and are excited to ramp up scheduling as we begin a research program with the University of Indianapolis in the coming months!

Breakthrough in SCI Research Restores Movement – NeuroHope Partners with the NRN

An announcement at Frazier Rehabilitation Institute is sending shockwaves through the spinal cord injury community.  Andrew Meas, a 32-year old man who sustained a complete spinal cord injury in a motorcycle crash in 2006 is showing the world he can voluntarily move his legs.  It is the culmination of a 44-month long research project involving electrical stimulation and extensive therapy led by Dr. Susan Harkema, Director of the Christopher and Dana Reeve Foundation NeuroRecovery Network (NRN).

In 2018 NeuroHope of Indiana will become a proud member of the NRN, and 1 of 11 sites in the world collecting data its data.

In 2012, Meas was one of four individuals that Harkema and her team implanted with an electronic device. A stimulator was placed directly on his spinal cord that sent signals straight to his central nervous system. The researchers called it epidural stimulation, and the results made global headlines in 2014. They found that when the stimulation was turned on, VOLUNTARY movement occurred in all four individuals – a totally unexpected result.

In the three years since, Meas has been participating in aggressive rehabilitation and further research using a combination of stimulation from his implanted device and high-speed treadmill training. All of which led to the exciting announcement that after years of training, VOLUNTARY movement has occurred even with the stimulation device turned OFF!

Read the article in Newsweek here, and the official study here.

Dr. Harkema and Andrew Meas talk about the findings in the video below:

Dr. Harkema’s work is based on the physiology of the spinal cord and its capacity to “remember” and recover. She has brought her ideas to the Reeve Foundation NeuroRecovery Network (NRN), a collaboration of rehabilitation centers that focus on exploring the treatment of neurologic injury through activity-based therapies – a very specific form of task-specific interventions below the injury level.

In 2018, NeuroHope will become the 11th NRN affiliate in the world, and one of only 4 independent sites outside of a major rehabilitation hospital system. NRN sites continue to build upon Dr. Harkema’s work in electrical stimulation by exclusively incorporating Neuromuscular Electrical Stimulation (NMES) into some treatment plans. NMES is non-invasive stimulation that uses electrodes on the skin at exclusive parameters to target the central nervous system.

In the coming months NeuroHope staff will be trained directly by Dr. Harkema and her team in the activity-based interventions the NRN performs. We will be sending data to the NRN, as well as collecting outcome and patient satisfaction measures with a researchers from the University of Indianapolis.

The success of the epidural stimulation implant in Andrew Meas and the work of the NRN provides new knowledge and a new diving off point for future discoveries in treating – and someday curing – spinal cord injury. It is an exciting time for neurologic research, and we are honored to be a part of it!